As the mother of three sons living with mitochondrial disease, Libby has over 25 years of experience navigating the healthcare system. Libby began volunteering as a Parent Mentor in 1995 and has been working to improve health systems and empower patients and families to be active partners in care ever since. Libby strives to build the infrastructure and capacity for healthcare organizations to engage all patients and families, from the bedside to the boardroom.
In 2010, Libby founded PFCCpartners to create a community of patients, families, providers and health care organizations committed to the shared learning of Patient & Family Centered Care practice. PFCCpartners also supports the PFANetwork, inclusive of more than 600 Patient Family Advisors working in healthcare settings across the country to partner for improvement in the quality, safety, experience and the design of healthcare.
Libby is committed to partnership and has served as a patient family advisor to organizations such as Center for Medicaid Medicare Services, National Quality Forum, Patient Centered Outcomes Research Institute, National Academy of Medicine and many others. In these efforts and in all activities, Libby strives to co create better care and a better healthcare system through partnership.